Parents Shocked After Baby is Born With a ‘Permanent Smile’ Condition, and Social Media is Falling in Love

Ayla Summer Mucha was born on December 30, 2021, with a permanent smile on her face, the result of a condition known as Bilateral Macrostomia. The chances are pretty good that you’ve likely never heard of the condition before, if so, you’re not alone. It’s such a rare condition that fewer than 20 people have ever been diagnosed. Fortunately, the condition hasn’t prevented the sweet girl from enjoying a happy life, full of love.

 

 

Cristina Vercher and her husband Blaize Mucha are from Australia and got some incredibly life-changing news in 2021. They would be welcoming their first baby into their lives. On December 30, 2021, a girl, Ayla, was delivered by C-section. Although things had gone well, the doctors suddenly noticed the baby had what appeared to be a permanent smile. Despite the shocking news Cristina and Blaize experienced for the first time, a special feeling that most parents know well, indescribable and unwavering love.

 

 

 

Concerns Associated with Her Permanent Smile

As to be expected, the couple were overjoyed but also concerned about the wellbeing of their new little one. “This made the experience all the more worrying as it took several hours for a doctor to give us an answer. With this came more difficulties as the hospital had little knowledge or support for such a rare condition.” Explained Cristina. “All I could think about as a mother was where I went wrong.”

To make matters worse, Cristina and Blaize were in their early 20’s, with little knowledge of the joys and struggles of parenting, let alone how to face the condition with which their new daughter was born. “Blaize and I were not aware of this condition, nor had I ever met someone born with a Macrostomia,” the young mom explained. “So, it came as a huge shock.”

Bilateral Macrostomia occurs when the corners of the mouth don’t fuse together in utero, resulting in a seemingly permanent smile. Although Cristina’s was a typical mom reaction, taking on the weight of the situation, medical professionals assured her and Blaize there was nothing they could have done to prevent the permanent smile. Nor were they in any way responsible for the medical phenomena. A discovery that came after a series of tests including genetic testing.

 

Spreading Information is Their Mission

Comforted in knowing they weren’t the cause, Cristina and Blaize set their focus on something else, what they could do for their deeply loved, new baby. They would need to work harder to help her learn to do things like latch or suckle. Moreover, as rare as Bilateral Macrostomia is, it’s even more rare that it’s not accompanied by another form disability. As such, the family also wondered whether or not Ayla would be able to have a full life, or one that didn’t come with numerous obstacles.

Upon learning more, the pair realized just how little is known about the rare condition. The condition that gave their baby a permanent smile. As a result, they turned to social media platforms to help spread awareness. Unsurprisingly, the pair was met with mixed responses, but the majority of the world fell in love with Ayla Summer Mucha and her permanent smile.

Meeting Haters with Compassion

Understanding the Permanent Smile

 

 

 

CONTINUE READING……

 

Author: eazynews23.com

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